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On and off the track, Will Harvey always goes the extra mile. Diagnosed with cystic fibrosis at an early age, Will has embraced the disease and uses it to discover new experiences every day. At the age of 10, Will began to race at the local dirt track and has not slowed down since then, picking up victories across the country from Texas to Pennsylvania.

Off the track, Will matches his on-track efforts in both the classroom and the community. When there is a spare moment away from his course work at MIT (Massachusetts Institute of Technology), Will enjoys cycling and contributing to the university’s Formula SAE team, which engineers, builds, and races a formula car against other universities from across the country. Will’s passion and determination on the racetrack are also evident in his work with the Cystic Fibrosis Foundation, where he raises awareness and funds for scientific research.

 
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The Marlin Oil Golf Classic

Every year, a hundred or so people come together to golf before the fall weather hits to make a difference in the fight against CF. Since entering a chairman role in 2012, Will has led fundraising efforts for the annual event, which has raised over two million of dollars for Cystic Fibrosis research.

Without the efforts of events such as the golf tournament, critical therapies would still be in the early stages of the drug pipeline, far from benefiting those who need help now. An amazing community of individuals and businesses from Oklahoma and Texas to Rhode Island and Virginia has developed over the last decade, making the tournament into one of the best events in the region. If you are motivated to join our community in the fight against CF, check out the Oklahoma City Chapter's page for events and ways to be involved.

What is Cystic Fibrosis?

Cystic fibrosis (CF) is a genetic disease that affects the lungs and pancreas, causing both to lose vital functions over time. People with the CF have a faulty gene (CFTR gene) that prevents proper protein production, causing natural mucus in the body to thicken and clog the lungs and digestive system. Chronic coughing, food digestion difficulties, and poor growth in childhood are common traits that characterize cystic fibrosis. 

Currently, over 30,000 people in the United States and 70,000 worldwide fight cystic fibrosis. Daily therapies for many people with CF consist of 30 to 40 pills and breathing treatments that work together to combat mucus buildup. Fifty years ago, it was remarkable if someone with CF reached adulthood; today, the life expectancy has passed 40 and continues to increase with every new treatment released!